| Literature |
In-framework annotation |
| Crook B, Glowacki EM, Love B, Jones BL, Macpherson CF, Johnson RH. Hanging by a thread: exploring the features of nonresponse in an online young adult cancer survivorship support community. J Cancer Surviv. 2016 |
\Content:emotion |
| Thompson CM, Crook B, Love B, Macpherson CF, Johnson R. Understanding how adolescents and young adults with cancer talk about needs in online and face-to-face support groups. J Health Psychol. 2015 |
\Content:emotion Setting of support Memb char:demographics |
| Bouma G, Admiraal JM, de Vries EG, Schröder CP, Walenkamp AM, Reyners AK. Internet-based support programs to alleviate psychosocial and physical symptoms in cancer patients: a literature analysis. Crit Rev Oncol Hematol. 2015 |
\Review |
| Batenburg A, Das E. Emotional approach coping and the effects of online peer-led support group participation among patients with breast cancer: a longitudinal study. J Med Internet Res. 2014 |
\Content:emotion Impact:psycho |
| Lepore SJ, Buzaglo JS, Lieberman MA, Golant M, Greener JR, Davey A. Comparing standard versus prosocial internet support groups for patients with breast cancer: a randomized controlled trial of the helper therapy principle. J Clin Oncol. 2014 |
\Impact:behavioural Impact:psycho RCT |
| Lobchuk M, McClement S, Rigney M, Copeland A, Bayrampour H. A Qualitative Analysis of Naturalistic" Conversations in a Peer-Led Online Support Community for Lung Cancer." Cancer Nurs. 2015 |
\Content:topic |
| Frost J, Vermeulen IE, Beekers N. Anonymity versus privacy: selective information sharing in online cancer communities. J Med Internet Res. 2014 |
\Content:topic Engagement |
| Lewallen AC, Owen JE, Bantum EO, Stanton AL. How language affects peer responsiveness in an online cancer support group: implications for treatment design and facilitation. Psychooncology. 2014 |
\Content:language use Impact:behavioural |
| Batenburg A, Das E. Emotional coping differences among breast cancer patients from an online support group: a cross-sectional study. J Med Internet Res. 2014 |
\Memb char:personality |
| Griffiths C, Panteli N, Brunton D, Marder B, Williamson H. Designing and evaluating the acceptability of Realshare: An online support community for teenagers and young adults with cancer. J Health Psychol. 2015 |
\Memb char:age |
| Patterson P, McDonald FE, Orchard P. A new Australian online and phone mental health support service for young people living with cancer. Australas Psychiatry. 2014 |
\Memb char:nation and ethnicity |
| Portier K, Greer GE, Rokach L, Ofek N, Wang Y, Biyani P, Yu M, Banerjee S, Zhao K, Mitra P, Yen J. Understanding topics and sentiment in an online cancer survivor community. J Natl Cancer Inst Monogr. 2013 |
\Content:emotion Content:topic |
| Namkoong K, McLaughlin B, Yoo W, Hull SJ, Shah DV, Kim SC, Moon TJ, Johnson CN, Hawkins RP, McTavish FM, Gustafson DH. The effects of expression: how providing emotional support online improves cancer patients' coping strategies. J Natl Cancer Inst Monogr. 2013 |
\Content:emotion Type of support |
| Xu Y, Testerman LS, Owen JE, Bantum EO, Thornton AA, Stanton AL. Modeling intention to participate in face-to-face and online lung cancer support groups. Psychooncology. 2014 |
\Setting of support |
| Han JY, Hou J, Kim E, Gustafson DH. Lurking as an active participation process: a longitudinal investigation of engagement with an online cancer support group. Health Commun. 2014 |
\Engagement:lurking |
| Yli-Uotila T, Rantanen A, Suominen T. Online social support received by patients with cancer. Comput Inform Nurs. 2014 |
\Content:topic |
| Park H, Park MS. Cancer information-seeking behaviors and information needs among Korean Americans in the online community. J Community Health. 2014 |
\Memb char:nation and ethnicity |
| Wagner-Johnston N. Computer/Online-mediated social support for cancer-related fatigue. J Natl Compr Canc Netw. 2013 |
\Review |
| Yoo W, Namkoong K, Choi M, Shah DV, Tsang S, Hong Y, Aguilar M, Gustafson DH. Giving and Receiving Emotional Support Online: Communication Competence as a Moderator of Psychosocial Benefits for Women with Breast Cancer. Comput Human Behav. 2014 |
\Content:emotion Memb char:personality |
| Mattsson S, Alfonsson S, Carlsson M, Nygren P, Olsson E, Johansson B. U-CARE: Internet-based stepped care with interactive support and cognitive behavioral therapy for reduction of anxiety and depressive symptoms in cancer--a clinical trial protocol. BMC Cancer. 2013 |
\Impact:behavioural Impact:psycho |
| Sublett CM. Adding to the evidence base: effects of an online support group for prostate cancer survivors: a randomized trial. Urol Nurs. 2013 |
\Impact:physical RCT |
| Osei DK, Lee JW, Modest NN, Pothier PK. Effects of an online support group for prostate cancer survivors: a randomized trial. Urol Nurs. 2013 |
\Impact:physical RCT |
| Bender JL, Katz J, Ferris LE, Jadad AR. What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities. Patient Educ Couns. 2013 |
\Setting of support |
| Hwang KO, Ottenbacher AJ, Graham AL, Thomas EJ, Street RL Jr, Vernon SW. Online narratives and peer support for colorectal cancer screening: a pilot randomized trial. Am J Prev Med. 2013 |
\Memb char:disease Impact:physical RCT |
| Love B, M Thompson C, Crook B, Donovan-Kicken E. Work and mass personal" communication as means of navigating nutrition and exercise concerns in an online cancer community." J Med Internet Res. 2013 |
\Content:topic |
| Sillence E. Giving and receiving peer advice in an online breast cancer support group. Cyberpsychol Behav Soc Netw. 2013 |
\Content:topic |
| Love B, Moskowitz MC, Crook B, Thompson CM, Donovan-Kicken E, Stegenga K, Macpherson CF, Johnson RH. Defining adolescent and young adult (AYA) exercise and nutrition needs: concerns communicated in an online cancer support community. Patient Educ Couns. 2013 |
\Memb char:age Content:topic |
| Stephen J, Rojubally A, Macgregor K, McLeod D, Speca M, Taylor-Brown J, Fergus K, Collie K, Turner J, Sellick S, Mackenzie G. Evaluation of CancerChatCanada: a program of online support for Canadians affected by cancer. Curr Oncol. 2013 |
\Memb char:nation and ethnicity |
| Yli-Uotila T, Rantanen A, Suominen T. Motives of cancer patients for using the Internet to seek social support. Eur J Cancer Care (Engl). 2013 |
\Memb char:motif of usage |
| Kazanjian A, Smillie K, Stephen J. Evaluating a knowledge exchange intervention in cancer survivorship care: a workshop to foster implementation of Online Support Groups. Support Care Cancer. 2013 |
\Impact:behavioural |
| Kim SC, Shah DV, Namkoong K, McTavish FM, Gustafson DH. Predictors of Online Health Information Seeking Among Women with Breast Cancer: The Role of Social Support Perception and Emotional Well-Being. J Comput Mediat Commun. 2013 |
\Memb char:personality |
| Gill PS, Whisnant B. A qualitative assessment of an online support community for ovarian cancer patients. Patient Relat Outcome Meas. 2012 |
\Content:topic |
| Bender JL, Jimenez-Marroquin MC, Ferris LE, Katz J, Jadad AR. Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use. Support Care Cancer. 2013 |
\Review |
| Durant KT, McCray AT, Safran C. Identifying gender-preferred communication styles within online cancer communities: a retrospective, longitudinal analysis. PLoS One. 2012 |
\Memb char:gender Memb char:personality |
| Yoo W, Chih MY, Kwon MW, Yang J, Cho E, McLaughlin B, Namkoong K, Shah DV, Gustafson DH. Predictors of the change in the expression of emotional support within an online breast cancer support group: a longitudinal study. Patient Educ Couns. 2013 |
\Content:emotion Content:topic |
| Love B, Crook B, Thompson CM, Zaitchik S, Knapp J, Lefebvre L, Jones B, Donovan-Kicken E, Eargle E, Rechis R. Exploring psychosocial support online: a content analysis of messages in an adolescent and young adult cancer community. Cyberpsychol Behav Soc Netw. 2012 |
\Memb char:age Content:emotion Content:topic |
| Hwang KO, Trickey AW, Graham AL, Thomas EJ, Street RL Jr, Kraschnewski JL, Vernon SW. Acceptability of narratives to promote colorectal cancer screening in an online community. Prev Med. 2012 |
\Content:topic |
| Ruland CM, Andersen T, Jeneson A, Moore S, Grimsbø GH, Børøsund E, Ellison MC. Effects of an internet support system to assist cancer patients in reducing symptom distress: a randomized controlled trial. Cancer Nurs. 2013 |
\Impact:psycho RCT |
| Bender JL, Wiljer D, To MJ, Bedard PL, Chung P, Jewett MA, Matthew A, Moore M, Warde P, Gospodarowicz M. Testicular cancer survivors' supportive care needs and use of online support: a cross-sectional survey. Support Care Cancer. 2012 |
\Memb char:disease |
| Classen CC, Chivers ML, Urowitz S, Barbera L, Wiljer D, O'Rinn S, Ferguson SE. Psychosexual distress in women with gynecologic cancer: a feasibility study of an online support group. Psychooncology. 2013 |
\Memb char:disease |
| Paul CL, Clinton-McHarg T, Lynagh M, Sanson-Fisher RW, Tzelepis F. On-line information and support for supporters and carers of haematological cancer patients: is access an issue? Support Care Cancer. 2012 |
\Memb char:disease Content:topic |
| Tercyak KP, Mays D, DeMarco TA, Sharff ME, Friedman S. Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors. J Med Internet Res. 2012 |
\Memb char:user |
| Klemm P. Effects of online support group format (moderated vs peer-led) on depressive symptoms and extent of participation in women with breast cancer. Comput Inform Nurs. 2012 |
\Engagement:moderation |
| Setoyama Y, Yamazaki Y, Namayama K. Benefits of peer support in online Japanese breast cancer communities: differences between lurkers and posters. J Med Internet Res. 2011 |
\Impact:behaviorial Engagement:lurking |
| Han JY, Kim JH, Yoon HJ, Shim M, McTavish FM, Gustafson DH. Social and psychological determinants of levels of engagement with an online breast cancer support group: posters, lurkers, and nonusers. J Health Commun. 2012 |
\Engagement:lurking |
| Durant KT, McCray AT, Safran C. Identifying Temporal Changes and Topics that Promote Growth Within Online Communities: A Prospective Study of Six Online Cancer Forums. Int J Comput Models Algorithms Med. 2011 |
\Content:topic |
| Chen AT. Exploring online support spaces: using cluster analysis to examine breast cancer, diabetes and fibromyalgia support groups. Patient Educ Couns. 2012 |
\Memb char:disease |
| Coulson NS, Greenwood N. Families affected by childhood cancer: an analysis of the provision of social support within online support groups. Child Care Health Dev. 2012 |
\Memb char:user Type of support |
| Lepore SJ, Buzaglo JS, Lieberman MA, Golant M, Davey A. Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial. BMC Cancer. 2011 |
\Impact:psycho RCT |
| Im EO, Lee B, Chee W. The use of internet cancer support groups by Asian Americans and White Americans living with cancer. J Transcult Nurs. 2011 |
\Memb char:nation and ethnicity |
| Hong Y, Peña-Purcell NC, Ory MG. Outcomes of online support and resources for cancer survivors: a systematic literature review. Patient Educ Couns. 2012 |
\Review |
| Im EO. Online support of patients and survivors of cancer. Semin Oncol Nurs. 2011 |
\Review |
| Shim M, Cappella JN, Han JY. How Does Insightful and Emotional Disclosure Bring Potential Health Benefits?: Study Based on Online Support Groups for Women with Breast Cancer. J Commun. 2011 |
\Memb char:motif of usage |
| Wiljer D, Urowitz S, Barbera L, Chivers ML, Quartey NK, Ferguson SE, To M, Classen CC. A qualitative study of an internet-based support group for women with sexual distress due to gynecologic cancer. J Cancer Educ. 2011 |
\Memb char:disease Impact |
| Kim E, Han JY, Moon TJ, Shaw B, Shah DV, McTavish FM, Gustafson DH. The process and effect of supportive message expression and reception in online breast cancer support groups. Psychooncology. 2012 |
\Content:topic Impact:behavioural |
| Han JY, Shah DV, Kim E, Namkoong K, Lee SY, Moon TJ, Cleland R, Bu QL, McTavish FM, Gustafson DH. Empathic exchanges in online cancer support groups: distinguishing message expression and reception effects. Health Commun. 2011 |
\Impact:psycho |
| Setoyama Y, Yamazaki Y, Nakayama K. Comparing support to breast cancer patients from online communities and face-to-face support groups. Patient Educ Couns. 2011 |
\Setting of support |
| Huber J, Ihrig A, Peters T, Huber CG, Kessler A, Hadaschik B, Pahernik S, Hohenfellner M. Decision-making in localized prostate cancer: lessons learned from an online support group. BJU Int. 2011 |
\Content:topic |
| Im EO, Lee B, Chee W. The questions on the use of internet cancer support groups: instrument development. Comput Inform Nurs. 2011 |
\Engagement:activeness |
| Huber J, Peters T, Kessler A, Ihrig A, Huber CG, Hadaschik B, Pahernik S, Hohenfellner M. [Online support groups for localized prostate cancer: qualitative analysis of decision making]. Urologe A. 2010 |
\Content |
| Vilhauer RP, McClintock MK, Matthews AK. Online support groups for women with metastatic breast cancer: a feasibility pilot study. J Psychosoc Oncol. 2010 |
\Engagement:dropout Engagement:activeness |
| Stephen JE, Christie G, Flood K, Golant M, Rahn M, Rennie H, Speca M, Taylor-Brown J, Turner J. Facilitating online support groups for cancer patients: the learning experience of psycho-oncology clinicians. Psychooncology. 2011 |
\Content:topics |
| Im EO, Chee W, Tsai HM, Lim HJ, Guevara E, Liu Y. Evaluation criteria for internet cancer support groups. Comput Inform Nurs. 2010 |
\Characterization |
| Høybye MT, Dalton SO, Deltour I, Bidstrup PE, Frederiksen K, Johansen C. Effect of Internet peer-support groups on psychosocial adjustment to cancer: a randomised study. Br J Cancer. 2010 |
\Impact:psycho |
| Im EO, Lee B, Chee W. Shielded from the real world: perspectives on Internet cancer support groups by Asian Americans. Cancer Nurs. 2010 |
\Memb char:nation and ethnicity |
| McDowell H, Kim E, Shaw BR, Han JY, Gumieny L. Predictors and Effects of Training on an Online Health Education and Support System for Women with Breast Cancer. J Comput Mediat Commun. 2010 |
\Engagement:activeness |
| Vilhauer RP. Perceived benefits of online support groups for women with metastatic breast cancer. Women Health. 2009 |
\Impact Content:topic |
| Setoyama Y, Nakayama K, Yamazaki Y. Peer support from online community on the internet among patients with breast cancer in Japan. Stud Health Technol Inform. 2009 |
\Memb char:nation and ethnicity |
| Høybye MT, Dalton SO, Christensen J, Ross L, Kuhn KG, Johansen C. Social and psychological determinants of participation in internet-based cancer support groups. Support Care Cancer. 2010 |
\Memb char:social status Memb char:personality |
| Salzer MS, Palmer SC, Kaplan K, Brusilovskiy E, Ten Have T, Hampshire M, Metz J, Coyne JC. A randomized, controlled study of Internet peer-to-peer interactions among women newly diagnosed with breast cancer. Psychooncology. 2010 |
\Impact:psycho |
| Quin J, Stams V, Phelps B, Boley T, Hazelrigg S. Interest in internet lung cancer support among rural cardiothoracic patients. J Surg Res. 2010 |
\Memb char:social status |
| Im EO, Lee SH, Liu Y, Lim HJ, Guevara E, Chee W. A national online forum on ethnic differences in cancer pain experience. Nurs Res. 2009 |
\Memb char:nation and ethnicity |
| Weiss JB, Lorenzi NM. Building a shared vision for an online cancer survivorship community. AMIA Annu Symp Proc. 2009 |
\Community creation |
| Han JY, Shaw BR, Hawkins RP, Pingree S, McTavish F, Gustafson DH. Expressing positive emotions within online support groups by women with breast cancer. J Health Psychol. 2008 |
\Impact:psycho Content:emotion |
| Shaw BR, Jeong Yeob Han, Hawkins RP, McTavish FM, Gustafson DH. Communicating about self and others within an online support group for women with breast cancer and subsequent outcomes. J Health Psychol. 2008 |
\Impact:psycho Content:emotion |
| Lieberman MA. Gender and online cancer support groups: issues facing male cancer patients. J Cancer Educ. 2008 |
\Memb char:gender |
| LaCoursiere SP, Duggal M, Brandt CA, Knobf MT, McCorkle R. Breast cancer Internet information and support (BCIIS): How are older persons different? AMIA Annu Symp Proc. 2007 |
\Memb char:age |
| Ruland CM, Jeneson A, Andersen T, Andersen R, Slaughter L, Bente-Schjødt-Osmo, Moore SM. Designing tailored Internet support to assist cancer patients in illness management. AMIA Annu Symp Proc. 2007 |
\Community creation |
| Fogel J, Ribisl KM, Morgan PD, Humphreys K, Lyons EJ. Underrepresentation of African Americans in online cancer support groups. J Natl Med Assoc. 2008 |
\Memb char:nation and ethnicity |
| Im EO, Chee W, Lim HJ, Liu WM. An online forum exploring needs for help of patients with cancer: gender and ethnic differences. Oncol Nurs Forum. 2008 |
\Memb char:gender Memb char:nation and ethnicity |
| Owen JE, Bantum EO, Golant M. Benefits and challenges experienced by professional facilitators of online support groups for cancer survivors. Psychooncology. 2009 |
\Impact:psycho |
| Liess A, Simon W, Yutsis M, Owen JE, Piemme KA, Golant M, Giese-Davis J. Detecting emotional expression in face-to-face and online breast cancer support groups. J Consult Clin Psychol. 2008 |
\Content:emotion |
| Gustafson DH, Hawkins R, McTavish F, Pingree S, Chen WC, Volrathongchai K, Stengle W, Stewart JA, Serlin RC. Internet-Based Interactive Support for Cancer Patients: Are Integrated Systems Better? J Commun. 2008 |
\Impact |
| McDonnell DD, Lee HJ, Kim YB, Kazinets G, Moskowitz JM. Cancer coverage in a mainstream and Korean American online newspaper: lessons for community intervention. Patient Educ Couns. 2008 |
\Memb char:nation and ethnicity |
| van Uden-Kraan CF, Drossaert CH, Taal E, Shaw BR, Seydel ER, van de Laar MA. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. Qual Health Res. 2008 |
\Impact:psycho |
| Im EO, Chee W. The use of Internet cancer support groups by ethnic minorities. J Transcult Nurs. 2008 |
\Memb char:nation and ethnicity |
| Klemm P. Late effects of treatment for long-term cancer survivors: qualitative analysis of an online support group. Comput Inform Nurs. 2008 |
\Impact:physical |
| Im EO, Chee W, Liu Y, Lim HJ, Guevara E, Tsai HM, Clark M, Bender M, Shin H, Kim KS, Kim YH. Characteristics of cancer patients in internet cancer support groups. Comput Inform Nurs. 2007 |
\Memb char:social status |
| Grupp S, Einarson A, Koren G. Cancer in pregnancy: Motherisk on-line question and answer forum. Can Fam Physician. 2007 |
\Memb char:disease |
| Beaudoin CE, Tao CC. Benefiting from social capital in online support groups: an empirical study of cancer patients. Cyberpsychol Behav. 2007 |
\Memb char:social status |
| Im EO, Chee W, Lim HJ, Liu Y, Guevara E, Kim KS. Patients' attitudes toward internet cancer support groups. Oncol Nurs Forum. 2007 |
\Content:topic |
| Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 |
\Type of support |
| Guevara E, Lim HJ, Tsai HM. Issues in online forum administration among multi-ethnic cancer patients. Stud Health Technol Inform. 2006 |
\Memb char:nation and ethnicity |
| Weiss JB, Lorenzi NM. Online communication and support for cancer patients: a relationship-centric design framework. AMIA Annu Symp Proc. 2005 |
\Community creation |
| Seale C. Gender accommodation in online cancer support groups. Health (London). 2006 |
\Memb char:gender |
| Seale C, Ziebland S, Charteris-Black J. Gender, cancer experience and internet use: a comparative keyword analysis of interviews and online cancer support groups. Soc Sci Med. 2006 |
\Memb char:gender |
| Winefield HR. Support provision and emotional work in an Internet support group for cancer patients. Patient Educ Couns. 2006 |
\Memb char:motif of usage |
| Lieberman MA, Goldstein BA. Not all negative emotions are equal: the role of emotional expression in online support groups for women with breast cancer. Psychooncology. 2006 |
\Impact:psycho Content:emotion |
| Im EO, Chee W, Tsai HM, Lin LC, Cheng CY. Internet cancer support groups: a feminist analysis. Cancer Nurs. 2005 |
\Memb char:gender |
| Owen JE, Klapow JC, Roth DL, Tucker DC. Use of the internet for information and support: disclosure among persons with breast and prostate cancer. J Behav Med. 2004 |
\Memb char:motif of usage |
| Høybye MT, Johansen C, Tjørnhøj-Thomsen T. Online interaction. Effects of storytelling in an internet breast cancer support group. Psychooncology. 2005 |
\Impact:psycho |
| Owen JE, Klapow JC, Roth DL, Nabell L, Tucker DC. Improving the effectiveness of adjuvant psychological treatment for women with breast cancer: the feasibility of providing online support. Psychooncology. 2004 |
\Impact:psycho |
| Klemm P, Bunnell D, Cullen M, Soneji R, Gibbons P, Holecek A. Online cancer support groups: a review of the research literature. Comput Inform Nurs. 2003 |
\Review |
| Leadbetter M. Internet support for people who are affected by breast cancer. Nurs Times. 2003 |
\Content |
| Winzelberg AJ, Classen C, Alpers GW, Roberts H, Koopman C, Adams RE, Ernst H, Dev P, Taylor CB. Evaluation of an internet support group for women with primary breast cancer. Cancer. 2003 |
\Impact:psycho |
| Sullivan CF. Gendered cybersupport: a thematic analysis of two online cancer support groups. J Health Psychol. 2003 |
\Content:topic |
| Fogel J, Albert SM, Schnabel F, Ditkoff BA, Neugut AI. Internet use and social support in women with breast cancer. Health Psychol. 2002 |
\Impact:psycho |
| Klemm P, Hardie T. Depression in Internet and face-to-face cancer support groups: a pilot study. Oncol Nurs Forum. 2002 |
\Setting of support |
| Sharp J. The Internet. Changing the way cancer survivors receive support. Cancer Pract. 2000 |
\Setting of support |
| Sutter JD. Cancer center Web site adds online support group. Continuum Soc Soc Work Leadersh Health Care. 2001 |
\Setting of support |
| Landro L. Alone together. Cancer patients and survivors find treatment--and support--online. It can make all the difference. Oncologist. 1999 |
\Type of support |
| Klemm P, Hurst M, Dearholt SL, Trone SR. Gender differences on Internet cancer support groups. Comput Nurs. 1999 |
\Memb char:gender |
| Klemm P, Reppert K, Visich L. A nontraditional cancer support group. The Internet. Comput Nurs. 1998 |
\Setting of support |
| Lamberg L. Online support group helps patients live with, learn more about the rare skin cancer CTCL-MF. JAMA. 1997 |
\Setting of support |
| Sharf BF. Communicating breast cancer on-line: support and empowerment on the Internet. Women Health. 1997 |
\Setting of support |
| Weinberg N, Schmale J, Uken J, Wessel K. Online help: cancer patients participate in a computer-mediated support group. Health Soc Work. 1996 |
\Setting of support Impact |
| Young, Colleen Community management that works: how to build and sustain a thriving online health community. J Med Internet Res. 2013 |
\Community creation |
| Leykin, Y., Thekdi, S. M., Shumay, D. M., Mu?oz, R. F., Riba, M.,Dunn, L. B. Internet interventions for improving psychological well©\being in psycho©\oncology: review and recommendations Psychooncology. 2012 |
\Setting of support |
| Hartzler A, Pratt W. Managing the personal side of health: how patient expertise differs from the expertise of J Med Internet Res. 2011 |
\Content:topic |
| Davison KP, Pennebaker JW, Dickerson SS Who talks? The social psychology of illness support groups American Psychologist. 2000 |
\Memb char:disease |
| Eysenbach G, Powell J, Englesakis M, Rizo C, Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ. 2004 |
\Impact |
| Owen JE, Klapow JC, Roth DL, Shuster JL, Bellis J, Meredith R, Tucker DC. Randomized pilot of a self-guided internet coping group for women with early-stage breast cancer Annals of Behavioral Medicine. 2005 |
\Impact:psycho RCT |
| Wang Y-C, Kraut RE, Levine JM Eliciting and receiving online support: using computer-aided content analysis to examine the dynamics of online social support J Med Internet Res 2015 |
\Content:topic Impact:behavioural |
| Mamykina L, Nakikj D, Elhadad N Collective Sensemaking in Online Health Forums ACM CHI 2015 |
\Engagement:sensemaking |
| Hartzler A, Pratt W. Managing the personal side of health: how patient expertise differs from the expertise of clinicians J Med Internet Res 2011 |
\Content:topic |
| Huh J, Yetisgen-Yildiz M, Pratt W Text classification for assisting moderators in online health communities. J Biomed Inform 2013 |
\Content:topic |
| Hoey LM, Ieropoli SC, White VM Systematic review of peer-support programs for people with cancer Patient Educ Couns 2008 |
\Review |
| Wang Y, Kraut R, Levine J. To stay or leave?: the relationship of emotional and informational support to commitment in online health support groups Proc ACM 2012 Conf Comput Support Coop Work 2012 |
\Type of support Impact:behavioural |
| Gustafson D, Hawkins R. Effect of computer support on younger women with breast cancer J Gen Med 2001 |
\Impact:psycho RCT |
| B?r?sund E, Cvancarova M, Moore SM Comparing effects in regular practice of e-communication and Web-based self-management support among breast cancer patients: preliminary results from a randomized controlled trial. J Med Internet Res 2014 |
\Impact:psycho RCT |
| Stanton AL, Thompson EH, Crespi CM Project connect online: randomized trial of an internet-based program to chronicle the cancer experience and facilitate communication. J Clin Oncol 2013 |
\Impact:psycho RCT |
| Lieberman M a, Golant M, Giese-Davis J, et al Electronic support groups for breast carcinoma: a clinical trial of effectiveness. Cancer 2003 |
\Impact:psycho |
| Winzelberg AJ, Classen C, Alpers GW, et al. Evaluation of an internet support group for women with primary breast cancer. Cancer 2003 |
\Impact:psycho |
| Campbell HS, Phaneuf MR, Deane K. Cancer peer support programs-do they work? Patient Educ Couns 2004 |
\Review |
| Shaw BR, McTavish F, Hawkins R, et al Experiences of women with breast cancer: exchanging social support over the CHESS computer network J Health Commun 2000 |
\Community creation |
| Gorlick A, Bantum EO, Owen JE. Internet-based interventions for cancer-related distress: exploring the experiences of those whose needs are not met. Psychooncology 2014 |
\Content:topic Memb char:motif of usage |
| Elhadad N, Zhang S, Driscoll P, et al. Characterizing the Sublanguage of Online Breast Cancer Forums for Medications, Symptoms, and Emotions. Proc AMIA Annual Fall Symposium. 2014 |
\Content:language use |
| Zhang S, Bantum E, Owen J, et al. Does Sustained Participation in an Online Health Community Affect Sentiment? Proc AMIA Annu Fall Symp 2014 |
\Content:emotion Impact:psycho |
| Qiu B, Zhao K, Mitra P, et al. Get Online Support, Feel Better -- Sentiment Analysis and Dynamics in an Online Cancer Survivor Community 2011 IEEE Third Int¡¯l Conf Privacy, Secur Risk Trust 2011 |
\Content:emotion Impact:psycho |
| Bender JL, Jimenez-Marroquin M-C, Jadad AR. Seeking support on facebook: a content analysis of breast cancer groups. J Med Internet Res 2011 |
\Content:topic |
| Lieberman MA, Goldstein BA. Self-help on-line: An outcome evaluation of breast cancer bulletin boards. J Health Psychol 2005 |
\Impact:psycho |
| Uden-Kraan C van Self-reported differences in empowerment between lurkers and posters in online patient support groups J Med internet Res 2008 |
\Engagement:lurking |
| Beaudoin C, Tao C. Modeling the impact of online cancer resources on supporters of cancer patients New Media Soc 2008 |
\Impact:psycho |
| Friedman R, Currall S. Conflict escalation: Dispute exacerbating elements of e-mail communication. Hum relations 2003 |
\Engagement:debate |
| Namkoong K, Shah D V, Han JY, et al Expression and reception of treatment information in breast cancer support groups: how health self-efficacy moderates effects on emotional well-being Patient Educ Couns 2010 |
\Memb char:personality |
| Ravert RD, Hancock MD, Ingersoll GM Online Forum Messages Posted by Adolescents With Type 1 Diabetes. Diabetes Educ 2004 |
\Memb char |
| Das A, Faxvaag A. What influences patient participation in an online forum for weight loss surgery? A qualitative case study Interact J Med Res 2014 |
\Memb char:disease |
| Owen JE, Goldstein MS, Lee JH, et al. Use of health-related and cancer-specific support groups among adult cancer survivors. Cancer 2007 |
\Memb char |
| Urcuyo KR, Boyers AE, Carver CS, et al. Finding benefit in breast cancer: Relations with personality, coping, and concurrent well-being. Psychol Health 2005 |
\Memb char:personality |
| Vlahovic T a., Wang Y-C, Kraut RE, et al. Support matching and satisfaction in an online breast cancer support community CHI 2014 |
\Content:topic |
| Nambisan P. Information seeking and social support in online health communities: impact on patients¡¯ perceived empathy. J Am Med Informatics Assoc 2011 |
\Impact:psycho |
| Zhao K, Greer G, Qiu B, et al. Finding influential users of an online health community: a new metric based on sentiment influence arXiv Prepr arXiv12116086 2012 |
\Content:sentiment |
| Park A, Hartzler A, Huh J, et al. Automatically detecting failures in natural language processing tools for online community text J Med Internet Res 2015 |
\Content |
| Civan A, Pratt W. Threading together patient expertise AMIA Annual Symposium Proceedings. 2007 |
\Content:topic |
| Cappiello M, Cunningham RS, Knobf MT, et al. Breast cancer survivors: information and support after treatment Clin Nurs Res 2007 |
\Type of support |
| Owen JE, Giese-Davis J, Cordova M, et al. Self-report and linguistic indicators of emotional expression in narratives as predictors of adjustment to cancer J Behav Med 2006 |
\Content:emotion |
| Liess A, Simon W, Yutsis M, et al. Detecting emotional expression in face-to-face and online breast cancer support groups. J Consult Clin Psychol 2008 |
\Content:emotion Setting of support |
| Kramer ADI, Fussell SR, Setlock LD Text analysis as a tool for analyzing conversation in online support groups CHI 2004 |
\Content |
| Mo PKH, Coulson NS Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of lurkers and posters Comput Human Behav 2010 |
\Engagement:lurking |
| Eysenbach G The law of attrition J Med Internet Res 2005 |
\Engagement:dropout |